Hard to believe it has only been a year. So much has changed in my and many MSers lives. We have had the fortune of Avis Favaro reporting on Dr. Zamboni's theory. I have to say the show W5 has totally changed my life. First it helped to make my MS make sense finally. My symptoms were really vascular and I knew I needed this surgery before any more damage occured. I had a hard couple of months trying to figure out where to have the procedure done but the Internet came in and I too must give it credit for helping to save my life too. Once I made the decision and went to Poland I have not looked back. It is close enough to 7 months now that I can say it was 7 months ago.
I am so glad that many of my special MS friends have received the procedure. As with anything in life there are those that have success and there will be some that don't have the results. My heart goes out to those that did not have the success with the surgery. I just really wanted everyone to get better and of course it didn't happen that way. We all deserve the chance for this surgery and our doctors and country have turned their backs on us. No one is more to blame for this than the MS Society of Canada. They have been the most at fault for telling doctors and the government to make sure this surgery does not happen. I find instead of bad mouthing them I spread the word to donate elsewhere. When charities phone for donations from me I explain that I had to spend 14 000 dollars for my own illness that the Society that signed up to help me has blocked. I say to call the MS Society and express that they would like to know why the MS Society has turned its back on the very people it is supposed to help. Of course they wouldn't but it made me feel a little better. My charity had to stay at home as that was a lot of money.
I just want to say that this has been one great year and I have everything to be thankful for. Now we need to spend our energies into making sure there can at the very least be follow-up care for us in Canada.
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Here is the site for Angioplasty for All.
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Val thanks for sharing your journey with us. You are truly a pioneer- helping to affect change; change that will PROFOUNDLY effect many people. Keep advocating and breaking ground! You are amazing!!
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